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Health Journey

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As a kid, I was very active and always had bruises from playing around. I was very athletic, yet very clumsy. I swam competitively till I turned 18. I have a back injury that has never healed. I have scoliosis and it makes it impossible for the right side of my back to heal. One of my discs rubs against my sacrum, making it painful to stand for long periods of time. Other than this, I had never struggled with my health.

When I went to college, I somehow triggered an extremely rare illness. I have a condition that mostly affects children, and that is rare in itself. I have Cyclic Vomiting Syndrome. This syndrome is caused by abdominal migraines. Only 2-3% of people in the world have this condition. It consists of recurrent, severe abdominal pain and vomiting. The episodes are often and occur at similar times. Mine have showed my cycles to begin at 4AM. The episodes last days or weeks. You can't even keep down water. I have been hospitalized with severe dehydration, kidney failure and deficiencies many times. These issues cause significant weight loss, intense full-body pain due to muscle degradation, on-set of new conditions and much more. I say all of this so you know I am tough and I am extremely perseverant. It took over a year to get diagnosed and another year to find a treatment. The journey was painful and heart-breaking, but it has made me who I am today. I still have episodes 1-3 days a month, but overall I am IMMENSELY better. I am immune-compromised, but I am not weak. I have different challenges and experiences than most my age, but I am tougher because of it.